Research

On One Condition is a podcast dedicated to exploring the realities of living with specific health conditions. Through candid conversations, listeners hear directly from individuals navigating these experiences, how their conditions affect daily life, the challenges they face, and the ways they learn to manage and adapt. Hosted by Sylvain Berthelot, who has spent over […]

The Visual Snow Initiative (VSI) is proud to announce that we have received three 2026 Communicator Awards of Distinction for our work advancing global awareness, education, and understanding of Visual Snow Syndrome. The Communicator Awards recognize excellence, effectiveness, and innovation across all areas of communication, marketing, and creative work Now in its 32nd year, the

Hello, my name is Sierra Domb. Since childhood, I have experienced Erythromelalgia (EM) and Autoimmune Dysregulation (AD). EM is a rare neurovascular disorder that causes episodes of severe burning pain, swelling, redness, and heightened blood flow in the extremities, often triggered by heat, activity, or stress. AD is a condition in which the immune system

Our Heart Speaks (OHS) is a global resource for people living with chronic medical conditions or disabilities, offering a unique platform where individuals can share their experiences of resilience and healing. Through personal narratives, poetry, photography, video, artwork, and music, it emphasizes the idea that “our personal narrative has the power to heal.”  Their online library,

My name is Sierra Domb, and I’ve lived with Erythromelalgia (EM), a rare neurovascular peripheral pain disorder, and co-occurring autoimmune issues since childhood. My symptoms include burning pain, swelling, redness, and heightened blood flow surging through my hands and feet. Although I enjoyed being outdoors and staying active, these activities were often difficult for me.

Tinnitus, brain fog and visual disturbances are “constant companions” for Steve Gillis since his recovery from a virus in 2023. He said he sees through “a set of filters” with a black and white pattern akin to analogue TV static, and has dark floaters that drag across his vision. Despite undergoing several tests over six

The Visual Snow Initiative (VSI) has successfully completed the final phase of its mission to secure the first-ever official and designated ICD codes for both Visual Snow Syndrome (VSS) and Visual Snow (VS). Led by Founder Sierra Domb, VSI collaborated closely with Dr. Peter Goadsby and Dr. Owen White to advocate for the inclusion of

Sierra Domb, CEO & Founder of the Visual Snow Initiative, shares her journey, from having one of the world’s most unrecognised medical conditions to starting her nonprofit and researching MBCT to help manage symptoms. A Medical Mystery In 2015, at the age of 21, my life was irrevocably altered. Upon waking, I noticed flashing lights

Sierra Domb Q&A – Part 1 Visual Snow Syndrome:VSI Research and Treatments by Sierra Domb, Founder & CEO, Visual Snow Initiative Sierra Domb Q&A – Part 2 – Visual Snow Syndrome: Causes and Triggers Sierra Domb Q&A – Part 3 – Activism, Educating Others About Visual Snow, & More Sierra Domb Q&A – Part 4

VSI’s Efforts to Get Visual Snow Syndrome Medically-Recognized and Accepted Worldwide Are Making Progress! by Sierra Domb, Founder & CEO, Visual Snow Initiative This update is a follow-up to a previous article titled: “ICD Code for Visual Snow Syndrome: Next Phase, MSAC voting“ We are now in the final phase of the ICD Process The