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Founded by Sierra Domb, the nonprofit Visual Snow Initiative (VSI) was selected for inclusion in the WHO/Europe Public Health Innovation Platform, a World Health Organization-hosted initiative that identifies and supports innovative public health solutions with the potential for system-level impact across the European Region. This recognition reflects VSI’s global impact in advancing awareness, research, education, […]

2026 Q&A Part 3 Sierra Domb, medical advocate and Founder of the Visual Snow Initiative (VSI), shares the challenges of advocating while managing chronic illness. She discusses burnout, personal growth, navigating stigma, and life lessons from living with Visual Snow Syndrome, Erythromelalgia, and Autoimmune Dysregulation. Part 3 of an in-depth Q&A. What have been the biggest

2026 Q&A Part 2 Sierra Domb, medical advocate and Founder of the Visual Snow Initiative (VSI), shares her journey in advocacy, raising awareness, and founding VSI. She discusses advancing research, creating resources, and guiding others on chronic illness activism. Part 2 of an in-depth Q&A. As an advocate, you turned your struggles with chronic medical

2026 Q&A Part 1 Sierra Domb, medical advocate, research collaborator, and Founder of the Visual Snow Initiative (VSI), shares her personal journey navigating multiple chronic conditions, including Visual Snow Syndrome, Erythromelalgia, and Autoimmune Dysregulation. Part 1 of an in-depth Q&A on chronic illness and advocacy. Please note: Her previous Q&A articles, covering her experiences with

Editor’s Note About the Author: Sierra Domb is a global health advocate and the Founder of the Visual Snow Initiative (VSI). After years of frightening medical tests, agonizing uncertainty, harmful misdiagnoses, and the dismissal of her symptoms as imaginary, Sierra was finally diagnosed with Visual Snow Syndrome (VSS) in her early 20s. She now shares her story

Editor’s Note To learn more about Visual Snow Syndrome (VSS) and access helpful information and a variety of resources for patients, doctors, and researchers, please visit: https://www.visualsnowinitiative.org What is Visual Snow Syndrome (VSS)? To understand the profound impact of VSS, we need to look beyond the eyes and focus on the brain. VSS is not a

Our latest blog is written by Sierra Domb, the CEO & Founder of the Visual Snow Initiative (VSI). After years of navigating chronic pain, invisible illness and a healthcare system with limited answers, the onset of Visual Snow Syndrome became a turning point that transformed fear and isolation into action. Through resilience and determination, Sierra founded the

We had the good fortune of connecting with Sierra Domb and we’ve shared our conversation below. Hi Sierra, have you ever found yourself in a spot where you had to decide whether to give up or keep going? How did you make the choice? Countless people told me I couldn’t achieve my goals, citing my

Sierra Domb shares her medical journey living with erythromelalgia and autoimmune dysregulation since childhood, and visual snow syndrome since young adulthood, reflecting on how these experiences shaped her global advocacy, scientific work, personal resilience and outlook on life Erythromelalgia and autoimmune dysregulation since childhood: challenges, nuance and resilience Living with a rare, chronic or misunderstood

Alright – so today we’ve got the honor of introducing you to Sierra Domb. We think you’ll enjoy our conversation, we’ve shared it below. Sierra, we’re thrilled to have you sharing your thoughts and lessons with our community. So, for folks who are at a stage in their life or career where they are trying